![]() People with a learning disability might find it difficult to describe their symptoms. ![]() Some behaviours that are related to a learning disability can look similar to seizures, for example absence seizures.It is not always easy for doctors to find the right diagnosis, as there are a number of conditions that can cause symptoms similar to epilepsy.This is where your knowledge as a carer of the person will be valuable. SUDEP Action has SUDEP information in Easy Read.Ī doctor can sometimes find it difficult to recognise when someone with a learning disability is having seizures. If the person you look after is still having night time seizures, you might also consider getting some sort of bed alarm or listening device, so you know when the seizures are happening.Įpilepsy Action has information on alarms and monitors and SUDEP and how to reduce the risks. Reducing the number of night time seizures is one of the ways to reduce the risk of SUDEP. If the person you care for has these types of seizure, make sure the doctor knows. One of the biggest causes of SUDEP is night time convulsive seizures. The most important thing to know about SUDEP is how to reduce risks. So it’s especially important, for you as a carer, to know about sudden unexpected death in epilepsy (SUDEP). People with epilepsy and a learning disability are more likely to die early than other people. Make a plan to do things that reduce those risks SUDEP Think about what the risks would be if they had a seizureģ. Knowing about triggers and patterns can offer some useful information about how to make an activity safeĢ. Keep a seizure diary or download an app to help get any information about patterns or triggers. Think about their seizures – what happens, how often they happen, specific triggers. If there are risks, it helps you work out what could be done to make that activity safe enough for them to do.ġ. ![]() Doing a safety checkĪ safety check helps you decide whether something is safe for the person you care for. These include ways to avoid injury inside and outside the home, seizure alarms and helmets.Įpilepsy Action has information about safety and about daily living aids. There are many different things to help a person with epilepsy and a learning disability stay safe. This helps doctors and healthcare staff to offer extra support.Īs well as an annual review with their doctor to look at general health issues, they should also have an annual review of their epilepsy with an epilepsy specialist. The National Institute for Health and Care Excellence (NICE) say that people with learning disabilities should be on a learning disabilities register with their doctor. Different care providers not working together in a joined up way. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |